He's Here! !

     Sorry, this post is a week and two days late. Easton was born on May 14! He weighed 6 lbs. 11 oz. and has long fingers and toes. He spent an extra 3 days in the hospital nursery due to his inability to keep his temperature up, and elevated Red Blood Cell Count in his blood. Luckily, the hospital gave mom a free room, so she could stay and feed him as much as possible. He didn't show much interest in eating, and seemed lethargic--nurses say it's because of his high red blood cell count.
     But he came home Friday and was a ravenous wolf for a few days, eating every 1 1/2 to 2 hours. He's been on  a jaundice light since coming home (jaundice is caused by the breakdown of red blood cells, so it was inevitable for him since he had so many), which has made him more of a center piece in our home than a son. We all want to hold him, but we know that the more he is on the light, the sooner he'll get better so we can hold him all we want.
     We've gone back three times for blood tests to check his jaundice, and his blood is so thick that they couldn't get it from his heels twice (they had to get it intravenously through a vein in his head). So far, he still needs to be on the light.
     Also, his testes haven't dropped yet. We're told that if they don't soon, they'll give him a hormone to make his body do it. If that doesn't work, then they'll operate.
     We still don't know about the kidney issue, he's got an ultrasound soon to check it out. We do know that at least one is working, since he can and does urinate.
     But lately he hasn't been eating as much. It's getting harder to keep him awake long enough for him to eat. We're talking 6-7 hours between feedings.
     Both mom and dad kind of had a breakdown yesterday. We were fed up with the doctors talking about tests, but never giving ideas about what could be causing it all. So dad looked his symptoms up online, and all things pointed to Trisomy 18. Surprise, surprise. We knew it was a possibility, but since he was still growing and the rest of his organs are functioning (as well as we can tell), that he was in the clear. As you know, if you've read past posts, Trisomy 18 is a death sentence. Most (like 95%) die before reaching age 1.
     We had ordered a chromosome test a week ago, but hadn't gotten back the results yet. We didn't know for sure, but all signs pointed to it. It was really hard. You think you can prepare for it, with all the foreknowledge we had, but you can't.
      But two of my cousins just happened to stop by, and we shared our concerns and one of them helped dad give Easton and mom a priesthood blessing. Peace was felt, but hard to keep. Still, we know that Jesus Christ understands our pain, worries and fears. So we turned to Him.

Today we received blessed news. The chromosome test came back negative. Easton doesn't have Trisomy 18! It isn't 100% conclusive, but they're pretty sure. They're looking into a few more tests to check for other chromosome anomalies, but for now, all he has is issues--not a fatal condition. We can work with issues. He's not out of the woods yet, but we have hope.