Just a simple family's experience with the possibility of a child with Trisomy 18

Friday, May 25, 2012

1st Post-Birth Ultrasound


     Easton had his first ultrasound today. They were looking for problems with his kidneys (fluid in them, signifying that there is a blockage somewhere making the fluid back up in his kidneys. The last ultrasound while still in the womb revealed one bad kidney and one mostly good one), and trying to find his testes (remind me to delete this entire blog before he gets old enough to know I'm writing blogs about his testes).
     Results: He still has one bad kidney and one less-than-good one. We're scheduling more tests involving radioactive dyes (or something like that). And the testes aren't in the scrotum, though they weren't able to verify whether they are hiding up above or not. I guess we'll learn more about that as tests progress.
     And, if you can't tell from the tone of my writing, we're feeling pretty good. Yesterday was a down day, today got better. Yesterday we had to force him to wake up so he could eat, but he just went back to sleep instead of eating. It's tuff when that's one of the few things that we can actually do to help him stay healthy, and we can't make it work. But this afternoon he woke up again and decided he wanted to eat and stay awake. Hallelluyah! (or however you spell it.)
     So, we took him off the jaundice light last night, then tested him today and found that his levels didn't go up any. So we're keeping him off till the next test, tomorrow morning. If his jaundice levels still don't go up, then we'll keep him off the jaundice light. Another halleluiah (sp?)!!!
      And, since it's a holiday weekend, we'll call and schedule the further kidney testing on Tuesday. As far as the chromosome testing goes, there's another test they can do that checks just about everything (seriously, after this test we'll be able to know if he'll be a nose picker, a thumb sucker, left or right handed, if he'll like brunettes or blondes after his mission, and a rough estimate at his fastest time for the mile run). No, but seriously, it should answer any questions we may have about his chromosomes. It's expensive, but at least it will rule out--or tell us what's up. I think that test takes 3 weeks, so we won't know  the results for a while.
      Over all, we feel good. We're holding him instead of watching him glow on his light. That alone makes things feel so much better.

No comments:

Post a Comment